Will Boag’s Poem

PD Warrior Living Legends

Meet Will Boag, one of our PD Warrior Living Legends who is an extremely talented poet. Will, embracing his PD talent aims to write one poem each day, here is one of his Parkinson’s poems that he recited to us on World Parkinson’s Day.

There is an-other voice that speaks; It’s hard to watch as saliva leaks
And often it is hard to hear; Anxiety’s another fear.
And then you shake, it draws attention; Or you forget what else to mention,
You may also flail like a wonky puppet; Or collapse in a ball as would a muppet.
You can be on your toes like a ballerina; Then quickly sit cause someone’s seen ya,
You freeze and find you can’t get goin’; And wish that you had taken up sewin’.
Your muscles tighten and the pain is bad; And you think ‘what’s next’ and feel a little sad,
Your tummy’s confused and you need more fibre; So desperate you search through cyber.
They also say to change your diet; The gut is where you have to fight it,
You wear a helmet and torch your tummy; Your grandkids think you’re really funny.
You then can stim -ulate your brain; But a lot of you goes down the drain,
And ultra sound it leaves a scar; Which can’t be changed if you go too far.
And then to bed where you can’t sleep; Or hallucinate if sleep is deep,
Then you lash out but someone’s there; They wake with a bruise, it just ain’t fair.
And then you try to have a cuddle; But no she won’t cause you’re in trouble,
In the ‘morn’ you can’t get out of bed; It’s going to get worse, it’s that you dread.
Our biggest danger’s called apathy; Which limits our wish for empathy,
If we find that key there’s lots to unlock; And then no longer will we watch the clock.
There’s still a chance of a fulfilling life; Despite your body getting in to strife,
It’s about working hard cause there’s lots to do; You’ve an option, and it’s really up to  you.
No matter the volume you still have a voice; Let apathy go and make your choice,
On April 11 it’s Parkinson’s Day; And that’s our chance to have our say.

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He is tenacious in his commitment to exercise and fighting Parkinson’s and does an outstanding job putting into words his Relationship with Parkinson’s…
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Past, Present and Future, by Stephen Knox:
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“Writing a story about something that occupies your past, present and future…

June – John Lake

Looking back, some indicators of PD had been there for maybe up to two years before my diagnosis in April 2019. Principally my hand writing (I am R hand dominant) was becoming more and more laboured. Some eight months earlier I had decided to learn the violin, so the clincher became that I could not bow smoothly with my right arm, which became increasingly frustrating for me and my teacher. My father was afflicted with Parkinson’s late in his life, so all added up, the diagnosis was just a confirmation of what I already suspected.

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Tracker

Tracker

The tracker is designed to help you track the amount of time you spend in scheduled exercise each day. Scheduled exercise is activity you have prioritised in your day for health and to help slow your Parkinson’s down. This might include PD Warrior exercise, fast walking, golfing, going to the gym etc. It does not include incidental activity such as housework & gardening (although we hope this increases too). The aim of the tracker is to help you build an exercise habit and to keep you accountable, so try and enter something each day.
At the end of the 10 Week Challenge you can download and review your overall performance.

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The goal of the Tribe 365 community is to share relevant Parkinson’s Disease information and resources, and support fellow members through the highs and lows of their journey with Parkinson’s Disease.

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