Parkinson’s is a challenge that makes my life interesting

“Parkinson’s is a challenge that makes my life interesting”
Julio… what an inspiration. I love your approach and support of everyone in the Tribe. Thank you for your refreshing approach to thriving with Parkinson’s. As a reminder, Julio was the January Spirit Award winner. To listen to Julio’s story and more about his upcoming swim to raise money for Cure Parkinson’s click on the link – Definitely worth your time!
Here are Julio’s comments from his Spirit award win.
“I was diagnosed with Parkinson’s just before my 60th birthday, and yes, it was a shock and I thought it was a life sentence… but when I asked my doctor what I could do, she described my current lifestyle anyway…. Exercise, yoga, meditation, nutrition, etc. Then I started rooting around and found the story of John Pepper in South Africa through that amazing book by Norman Doidge, “The Brain’s way of healing”. So I started power walking as opposed to just walking, then I discovered PD Warrior and more of the related literature of exercise and Parkinson’s.
I was referred to the wonderful Vicky Knight and signed up for the 10 Week Challenge with the one to one sessions added and I haven’t looked back! I’ve had my PD Warrior routine refined gradually by Vicky in the last weeks so as to fit into my busy exercise routine, and that has been invaluable. The aim has been to blend it in so it is not something extra, but a daily part of my routine. These days I’m waking at 6:39 (don’t ask! Haha), I go out to the garden, in any weather and I hose myself down with cold water. When it was winter here it’s been anything but trivial, some days involving showering in the snow and at others flexing the hose to loosen the ice inside or pouring boiling water on it to melt the ice.
I’m also preparing for a swim in aid of Cure Parkinson’s, from Gosport, near Portsmouth on the southern English coast across to Ryde on the Isle of Wight, organised by Vicky Knight and Peter Burns of Positively Parkinson’s called The Big Splash. They tell me is only 5kms but Google maps tells me it’s about 6kms!

Further information, updates, social media and donations regarding the Big Splash can be found on the following websites:

Facebook: Positively Parkinson’s Challenge
Instagram: positivelyparkinsonschallenge
Website: www.positivelyparkinsons.co.uk
Donations: www.justgiving.com/campaign/positivelyparkinsons-swimchallenge2020

 

 

Related Articles

January – Julio d’Escrivan

Julio is the perfect example of dreaming big and not letting Parkinson’s Disease put a ceiling on what you think you can achieve. Remember your goals and achievements are specific to YOU. Your marathon might be successfully walking around the block. Your Ironman might be climbing a set of stairs with more confidence. I hope you find Julio’s story as motivating as I did:
I am a composer of music for audio=visual media and a Senior Lecturer in Music and Sound for The Screen at the University of Huddersfield in West Yorkshire…

September – Stephen Knox

Stephen attends our ARC clinic weekly for PD Warrior group sessions and you will also recognise him from our Thursday online gym sessions.
He is tenacious in his commitment to exercise and fighting Parkinson’s and does an outstanding job putting into words his Relationship with Parkinson’s…
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Past, Present and Future, by Stephen Knox:
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“Writing a story about something that occupies your past, present and future…

Responses

Tracker

Tracker

The tracker is designed to help you track the amount of time you spend in scheduled exercise each day. Scheduled exercise is activity you have prioritised in your day for health and to help slow your Parkinson’s down. This might include PD Warrior exercise, fast walking, golfing, going to the gym etc. It does not include incidental activity such as housework & gardening (although we hope this increases too). The aim of the tracker is to help you build an exercise habit and to keep you accountable, so try and enter something each day.
At the end of the 10 Week Challenge you can download and review your overall performance.

Tribe 365 Community Guidelines

Overview

The goal of the Tribe 365 community is to share relevant Parkinson’s Disease information and resources, and support fellow members through the highs and lows of their journey with Parkinson’s Disease.

In order to meet the goals of this community, it’s important for members to feel like they are in a safe place that is populated by people with shared interests. As such, we request that you read and adhere to the guidelines that follow.

Guidelines:

  • Respect the privacy and personal information of other members
  • Communicate with courtesy and respect
  • Treat others online as you would treat them in real life
  • Be tolerant towards other’s viewpoints; respectfully disagree when opinions do not align

Please do not:

  • Sell or promote any products or services without the administrator’s prior permission
  • Make personal attacks on other community members
  • Use defamatory remarks or make false statements against others
  • Post prejudiced comments or profanity
  • Bully or make inflammatory remarks to other community members

Consequences:
We will take action when we see someone violating these guidelines. We request that all community members report behaviour that violates our guidelines to a member of the PD Warrior Team.

Agreement:
By logging onto the community and activating your profile, you are considered to be in agreement with the terms and conditions listed above.