Tribe Feed › Forums › 2023 Insight Summit › Robyn Higgins – Personal Parkinson’s story › Reply To: Robyn Higgins – Personal Parkinson’s story
RobynMember12/04/2023 at 11:06 am
Hi again Tianna
The question was also asked earlier.
The ProPD chart has been modified by my husband to enable weekly recording of the following
The 30 or so most common symotoms are rated as either
not experienced 0, no points
have had it but is managed and no longer presenting as a problem 1 point
Mild 25 points
Moderate 50 points
Severe 75 points
Very Severe 100 points
Those points are calculated to give a weekly total which goes into a chart to give an overall picture of impact of symptoms.It’s about watching progression and comparing with the common rates as indicated on Pro PD
We have noticed that vacation times my score increases until I return to normal routine….or look at meds, perhaps
We can look at what I’ve been doing to judge why and what changes need to be the target for the upcoming weeks to try to get it to a 1 point.
It helps over time to remember and is useful for informing the neurologist.