Member11/04/2023 at 7:10 pm
You indicated that foot Dystonia was often experienced with the PRKN & PINK1 mutation. Any form of targeted Mitochondrial treatment, or involvement in medical trials obviously requires knowing if you have the PRKN or PINK1 mutation. With a family history of Parkinsons through three successive generations all diagnosed at 61 (me, Father and his Mother), and foot dystonia exactly as per the patients in your video would you recommend genetic testing for myself and/or children? I’ve been considering it for a while as I understand it is quite expensive, but the recent emegence of dystonia is swaying me towards having it done..
- This reply was modified 10 months, 3 weeks ago by Stephen Dunn.