Tribe Feed › Forums › 2023 Insight Summit › What you always wanted to tell the Neurologist

  • Melissa

    Administrator
    12/04/2023 at 12:56 pm

    Welcome to the presentation. Please post any comments or questions for this interesting topic here.

  • John

    Member
    12/04/2023 at 1:37 pm

    Very interesting & enlightening. Thanks Joy.

  • PATRICIA

    Member
    12/04/2023 at 3:18 pm

    Thank you for your talk. When you talk about the smell, are you saying that we emit an odour or are you saying the way we can detect a smell, for example I can bend down and smell a rose?

  • Bronwyn

    Member
    12/04/2023 at 3:42 pm

    Thank you you have cast a new light on the years before the diagnosis and explained so much. Thank you for sharing your learned wisdom . (Who knew excessive ear wax was an indicator. ) This was most helpful in understanding the emotional journey.

  • Robert

    Member
    12/04/2023 at 4:58 pm

    This was a highly informative presentation on an interesting subject. Question: can anyone smell Parkinson’s or only a select few?

  • Joy

    Member
    13/04/2023 at 7:08 am

    Hello. Glad you liked the talk. Sorry it was not in full presentation mode.

    My smell capabilities are Hereditary, My Great Grandmother had it and my Grandmother and also my sisters but none of them did Nursing. As I nursed and acquired these smells I called it my Nursing bag of Smells. We have only found a few people who can do this and having met Neuroscientists at a conference in Tanzania, while identifying other biomarkers for TB, they had a chat with me. It is rare. As you have seen, a Gift and a Curse. I am glad it eased and explained but do be kind to yourselves and take care of yourselves.

    The TEDx Talk from Manchester 2023 should be on YouTube soon.

  • Harley

    Member
    03/05/2023 at 12:30 pm

    Hi Joy. I’d read your story and shared it with many. However, this presentation took you ability to a new level of frank and helpful disclosure. I’d like to think the talk could be made available for all to share. I’d like to use your test. Is all the same material available on your TED talk? Regards Harley

Start of Discussion
0 of 0 replies June 2018
Now

Tracker

Tracker

The tracker is designed to help you track the amount of time you spend in scheduled exercise each day. Scheduled exercise is activity you have prioritised in your day for health and to help slow your Parkinson’s down. This might include PD Warrior exercise, fast walking, golfing, going to the gym etc. It does not include incidental activity such as housework & gardening (although we hope this increases too). The aim of the tracker is to help you build an exercise habit and to keep you accountable, so try and enter something each day.
At the end of the 10 Week Challenge you can download and review your overall performance.

Tribe 365 Community Guidelines

Overview

The goal of the Tribe 365 community is to share relevant Parkinson’s Disease information and resources, and support fellow members through the highs and lows of their journey with Parkinson’s Disease.

In order to meet the goals of this community, it’s important for members to feel like they are in a safe place that is populated by people with shared interests. As such, we request that you read and adhere to the guidelines that follow.

Guidelines:

  • Respect the privacy and personal information of other members
  • Communicate with courtesy and respect
  • Treat others online as you would treat them in real life
  • Be tolerant towards other’s viewpoints; respectfully disagree when opinions do not align

Please do not:

  • Sell or promote any products or services without the administrator’s prior permission
  • Make personal attacks on other community members
  • Use defamatory remarks or make false statements against others
  • Post prejudiced comments or profanity
  • Bully or make inflammatory remarks to other community members

Consequences:
We will take action when we see someone violating these guidelines. We request that all community members report behaviour that violates our guidelines to a member of the PD Warrior Team.

Agreement:
By logging onto the community and activating your profile, you are considered to be in agreement with the terms and conditions listed above.