Tribe Feed › Forums › 2023 Insight Summit › What you always wanted to tell the Neurologist

  • Melissa

    Administrator
    12/04/2023 at 12:56 pm

    Welcome to the presentation. Please post any comments or questions for this interesting topic here.

  • John

    Member
    12/04/2023 at 1:37 pm

    Very interesting & enlightening. Thanks Joy.

  • PATRICIA

    Member
    12/04/2023 at 3:18 pm

    Thank you for your talk. When you talk about the smell, are you saying that we emit an odour or are you saying the way we can detect a smell, for example I can bend down and smell a rose?

  • Bronwyn

    Member
    12/04/2023 at 3:42 pm

    Thank you you have cast a new light on the years before the diagnosis and explained so much. Thank you for sharing your learned wisdom . (Who knew excessive ear wax was an indicator. ) This was most helpful in understanding the emotional journey.

  • Robert

    Member
    12/04/2023 at 4:58 pm

    This was a highly informative presentation on an interesting subject. Question: can anyone smell Parkinson’s or only a select few?

  • Joy

    Member
    13/04/2023 at 7:08 am

    Hello. Glad you liked the talk. Sorry it was not in full presentation mode.

    My smell capabilities are Hereditary, My Great Grandmother had it and my Grandmother and also my sisters but none of them did Nursing. As I nursed and acquired these smells I called it my Nursing bag of Smells. We have only found a few people who can do this and having met Neuroscientists at a conference in Tanzania, while identifying other biomarkers for TB, they had a chat with me. It is rare. As you have seen, a Gift and a Curse. I am glad it eased and explained but do be kind to yourselves and take care of yourselves.

    The TEDx Talk from Manchester 2023 should be on YouTube soon.

  • Harley

    Member
    03/05/2023 at 12:30 pm

    Hi Joy. I’d read your story and shared it with many. However, this presentation took you ability to a new level of frank and helpful disclosure. I’d like to think the talk could be made available for all to share. I’d like to use your test. Is all the same material available on your TED talk? Regards Harley

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