Tribe Feed Forums 2024 Insight Pain in Parkinson’s disease | Dr Vanessa Nguy

  • Melissa McConaghy

    Administrator
    11/04/2024 at 8:20 am

    Many thanks to Vanessa for the presentation and INSIGHTS.

    For any comments or questions, please add them here so that we can forward them on to the speaker.

  • Nadene Doherty

    Member
    11/04/2024 at 11:41 am

    Thanks Vanessa. Really enjoyed your presentation.

    • Vanessa Nguy

      Member
      17/04/2024 at 4:38 pm

      Thank you Nadene. I’m glad to hear that you enjoyed the presentation. Feel free to reach out if you have any questions or need further information.

  • Julie vazquez

    Member
    11/04/2024 at 12:11 pm

    Thank you so much Vanessa. Great presentation.!

    • Vanessa Nguy

      Member
      17/04/2024 at 4:40 pm

      Thank you Julie!

  • Kerry Bacon

    Member
    11/04/2024 at 12:11 pm

    Thank you Vanessa. Clear presentation of another important symptom of PD. It has given positive feedback to myself and another friend who has PD.

    • Vanessa Nguy

      Member
      17/04/2024 at 4:44 pm

      Thank you Kerry. I’m glad the presentation was helpful for you and your friend. We wanted to do this research to shed more light on this often overlooked symptom.

  • Shikha Mishra

    Member
    11/04/2024 at 12:21 pm

    Hi Vanessa,

    Thank you for an informative presentation. Could you please provide some specific pain assessment tools you used for PD patients during this study? Are there any specific outcome measures you recommend Exercise Physiologists to conduct for PD patients?

    Thank you,

    Shikha

    • Vanessa Nguy

      Member
      18/04/2024 at 7:17 am

      Hi Shikha,

      Thank you for your interest and for watching the presentation. In our study, we utilised specific pain assessment tools for people with Parkinson’s disease (PwP), including the King’s PD Pain Questionnaire and the Brief Pain Inventory. These tools provide valuable insights into various dimensions of pain experienced by PwP.

      Regarding outcome measures recommended for PwP by Exercise Physiologists, one potential tool to consider is the Brief Pain Inventory. The Brief Pain Inventory captures pain intensity and interference with daily activities, making it useful for assessing pain management effectiveness in PwP.

      While the Brief Pain Inventory is established as a valid tool for general pain assessment, its specific validation for PD populations is yet to be conducted. I recommend referring to this paper (https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/mdc3.12384), which appraises the clinometric properties of existing pain scales or questionnaires and provides recommendations for their use in PD. This resource can offer further guidance on selecting appropriate outcome measures for PD patients.

      Best regards,

      Vanessa

  • Jan Conaglen

    Member
    11/04/2024 at 12:29 pm

    Very engaging, excellent info but I was hoping for more of an explaination on peripheral neuropathy from which I am suffering mostly. I shall try not to focus on it so much.

  • 10 Week Challenge Rockliff

    Member
    11/04/2024 at 12:39 pm

    Many thanks for this excellent presentation. It was very easy to follow and understand. It has confirmed a lot about what is happening to me regarding pain.

    • Vanessa Nguy

      Member
      17/04/2024 at 6:06 pm

      Thank you Patricia! We conducted this research to shed more light on the topic of pain in Parkinson’s disease and I’m glad it was helpful for you.

  • John Wood

    Member
    11/04/2024 at 1:56 pm

    Hi Vanessa,

    An outstanding presentation and one that confirms my experiences. I was diagnosed four years ago but my PD progression has been very slow. Since then, I’ve been cycling 2 – 3 times a week and I’m fortunately able to attend DVA endorsed sessions, three times a week, with a team that includes a Psychologist, a Physiotherapist and an Exercise Physiologist.

    • Vanessa Nguy

      Member
      17/04/2024 at 5:05 pm

      Thank you for sharing your experience, John. We wanted to conduct this research to shed more light on pain in Parkinson’s disease and the individual experience that comes with it. It’s fantastic to hear that you’ve found strategies that work well for you and the comprehensive care you’re receiving from a psychologist, physiotherapist, and exercise physiologist.

  • Vittorio Natalizio

    Member
    11/04/2024 at 3:57 pm

    Hi Vanessa,

    I would like to thank you for a great presentation and information.

    Regards,

    Vic

    • Vanessa Nguy

      Member
      17/04/2024 at 5:00 pm

      You’re very welcome, Vic. I’m glad you found the presentation informative and helpful. If you have any further questions or need additional information, feel free to reach out anytime.

  • Mei Cheah

    Member
    11/04/2024 at 5:09 pm

    Excellent presentation which covered & addressed most aspects of my past pain experiences from rigidity, falls, dystonia, cramps, spasms…

    “No pain, no gain” where exercising is concerned. Now it’s how many hours a day from humble beginnings of how many days a week.

    Thank you Vanessa.

    • Vanessa Nguy

      Member
      17/04/2024 at 5:00 pm

      Thank you for your kind words and for sharing your past pain experiences, Mei. Pain is incredibly complex and influenced by so many factors as you have mentioned/experienced. Your commitment to exercise is wonderful to hear! If you ever need adjustments to your exercise program to manage your pain, reach out to your exercise physiologist or physiotherapist.

  • Lorna Dewan

    Member
    12/04/2024 at 5:37 am

    Thank you for your presentation. I find that most friends and family don’t recognize that you have pain. It’s not always there. I know that exercise helps, but some days it is very difficult. Keep pushing forward!!

    • Vanessa Nguy

      Member
      17/04/2024 at 4:53 pm

      Thank you for sharing your perspective, Lorna! You’re absolutely right that pain can be challenging for others to recognise, especially when it’s not constant or visible to others. It’s encouraging to hear that you’re finding exercise helpful. Remember, if you ever need modifications to your exercise program, don’t hesitate to reach out to your exercise physiologist or physiotherapist.

  • julie correll

    Member
    13/04/2024 at 10:53 am

    Julie 13th April

    Thank you for your informative and helpful presentation on pain.

    • Vanessa Nguy

      Member
      17/04/2024 at 4:48 pm

      You’re welcome Julie! I’m glad you found the presentation informative and helpful. If you have any further questions or need more information, feel free to reach out anytime.

  • Rebecca Perkins

    Member
    18/04/2024 at 8:00 pm

    Thanks Vanessa, Great presentation.

    It was interesting to know about the peripheral neuropathy as a cause of pain in PwP.

    Can you please direct us to literature to further explore the link between the peripheral neuropathy and PD?

    Can you please share any literature to explore the topic of Pain in PD?

  • Jennifer Miragaya

    Member
    13/05/2024 at 3:25 pm

    Thank you Vanessa. Your presentation certainly reflects my experiences of pain associated with PD and the factors that assist in the alleviation of pain, especially physical exercise and more specifically the benefits associated with hydrotherapy. Thank you. Jenny M

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