Tribe Feed Forums 2024 Insight Genetics of Parkinson’s disease: What do we know and what can we expect? | Assoc. Prof. Miguel Renteria

  • Genetics of Parkinson’s disease: What do we know and what can we expect? | Assoc. Prof. Miguel Renteria

    Posted by BB Admin on 09/04/2024 at 5:48 pm
    Miguel Renteria replied 2 months ago 11 Members · 17 Replies
  • 17 Replies
  • Melissa McConaghy

    Administrator
    11/04/2024 at 8:18 am

    Many thanks to Miguel for the presentation and great work being done.

    For any comments or questions, please add them here so that we can forward them on to the speaker.

  • Kathryn Young

    Member
    11/04/2024 at 10:29 am

    My mum has Parkinson’s as did her Uncle. Can mum and I be included in the trials?

    • Miguel Renteria

      Member
      11/04/2024 at 1:52 pm

      Hi Kathryn!

      Anyone in Australia with a PD diagnosis can join the study. To learn more, you can visit our website: https://www.qimrberghofer.edu.au/apgs/ . If more than one family member has been diagnosed, they may be invited to take part in the substudy on familial PD.

      Thank you for your interest in our work.

  • Suzanne Dow

    Member
    11/04/2024 at 10:45 am

    Can you send details for how to enrol in this research please?

  • Kerry Bacon

    Member
    11/04/2024 at 10:45 am

    Thank you for such a clear presentation. Very informative for those people with PD.

    • Miguel Renteria

      Member
      11/04/2024 at 1:54 pm

      Thanks for your support, Kerry!

  • John Wood

    Member
    11/04/2024 at 11:25 am

    Thank you for your presentation and great work Miguel.

    So pleased to be taking part in your fantastic research

    • Miguel Renteria

      Member
      11/04/2024 at 1:56 pm

      Thank you, John. We sincerely appreciate your contribution. Together, we can make a difference and help solve PD.

  • Jill Webb

    Member
    11/04/2024 at 1:57 pm

    Thanks for this update Miguel. As a person with PD, with 3 close family members also having had PD, this work is so relevant to me. I’ve contributed to APGS, and look forward to your future studies and results. Many thanks!

    • Miguel Renteria

      Member
      12/04/2024 at 10:10 pm

      Thanks for watching and for participating in the study, Jill. Did you receive the participant newsletter earlier this month? We’ll try to keep you all updated on our progress.

  • Carol Townsend

    Member
    11/04/2024 at 6:59 pm

    Good to know so much research is going on but clear there is so much mystery to still uncover. I was interested in the family link to other conditions, I have no family history of PD, was fit and active before a diagnosis and as far as I know no exposure to toxins but my father had a neurological condition called charcot-marie-tooth that affected his nervous system. Could this be a link?

    • Miguel Renteria

      Member
      12/04/2024 at 10:13 pm

      Hi Carol, Thanks for your message. There are ‘case studies’ reporting a possible relationship between CMT and PD. One potential mechanism has been proposed: mitochondrial function. However, the evidence is incipient, and we don’t know for sure. I hope you are well. Best regards.

  • Shirley Maier

    Member
    12/04/2024 at 3:29 am

    I live in Canada my sister has PD do you know where I can be in research I have no symptoms of PD

    • Miguel Renteria

      Member
      12/04/2024 at 10:16 pm

      Hi Shirley, One place to start looking would be the Canadian Open Parkinson Network (C-OPN). You can visit their website here: https://copn-rpco.ca/. Best wishes.

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