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PD Avengers

About

The Global Alliance to End Parkinson’s Disease (also known as the PD Avengers) is a Parkinson’s action coalition uniting our Parkinson’s community, our partners and friends from around the world, to stand together and demand change in how the disease is seen and treated.

We believe that in order to end this disease, all of us must use our collective superpowers to help those living with this disease live better lives while adding urgency to the cause of ending PD. We also believe in the tenet “think global, act local”. When it comes to advocacy, our tactics may be global, but we believe in activation of local PD Avengers and our partner organizations to fulfil the needs of their local community.

Our mission is divided into three pillars – advocacy, wellness and research.

Advocacy
We believe we must build a loud, uncomfortable, ever-present voice demanding change in how the disease is seen and treated.

Wellness
We believe every person with Parkinson’s should have equitable access to information, medication and therapies.

Research
We believe patients are integral in every aspect of research in the quest for better treatments and ending Parkinson’s.

This World Parkinson’s Day we helped to create and introduce The Spark as a new international symbol for Parkinson’s awareness. You can create your custom spark or send a pre-designed Spark across all social media platforms and look for The Spark in the GIPHY .GIFs. The Spark with “World Parkinson’s Day” is available in 47 different languages.

The Spark, inspired by dopamine – a critical electro-chemical neurotransmitter that people with the disease are striving to retain – will be used to energize a global movement and inspire urgency, unity and hope to end Parkinson’s Disease.

More than 80 Parkinson’s Disease organizations and thousands of advocates from 83 countries announce the launch of ‘The Spark,’ a new international symbol for Parkinson’s awareness, to increase conversation and public awareness around the world’s fastest growing neurological disease.

To learn more and join the PD Avengers visit our website www.PDAvengers.com and to share your spark go to www.worldparkinsonsday.com or www.ParkinsonsSpark.com.

Co-Founders: Larry Gifford (Larry@PDAvengers.com), Soania Mathur (Soania@unshakeablemd.com) and Tim Hauge (PDAvengerTim@icloud.com)

Tracker

Tracker

The tracker is designed to help you track the amount of time you spend in scheduled exercise each day. Scheduled exercise is activity you have prioritised in your day for health and to help slow your Parkinson’s down. This might include PD Warrior exercise, fast walking, golfing, going to the gym etc. It does not include incidental activity such as housework & gardening (although we hope this increases too). The aim of the tracker is to help you build an exercise habit and to keep you accountable, so try and enter something each day.
At the end of the 10 Week Challenge you can download and review your overall performance.

Tribe 365 Community Guidelines

Overview

The goal of the Tribe 365 community is to share relevant Parkinson’s Disease information and resources, and support fellow members through the highs and lows of their journey with Parkinson’s Disease.

In order to meet the goals of this community, it’s important for members to feel like they are in a safe place that is populated by people with shared interests. As such, we request that you read and adhere to the guidelines that follow.

Guidelines:

  • Respect the privacy and personal information of other members
  • Communicate with courtesy and respect
  • Treat others online as you would treat them in real life
  • Be tolerant towards other’s viewpoints; respectfully disagree when opinions do not align

Please do not:

  • Sell or promote any products or services without the administrator’s prior permission
  • Make personal attacks on other community members
  • Use defamatory remarks or make false statements against others
  • Post prejudiced comments or profanity
  • Bully or make inflammatory remarks to other community members

Consequences:
We will take action when we see someone violating these guidelines. We request that all community members report behaviour that violates our guidelines to a member of the PD Warrior Team.

Agreement:
By logging onto the community and activating your profile, you are considered to be in agreement with the terms and conditions listed above.